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An Ordinary Day : Kids with Rare Genetic Conditions by Karen Haderberg
US $25.99
ApproximatelyRM 111.19
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Condition:
Brand New
A new, unread, unused book in perfect condition with no missing or damaged pages.
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Shipping:
US $4.59 (approx RM 19.64) USPS Media MailTM.
Located in: Monroe Township, New Jersey, United States
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Estimated between Tue, 12 Aug and Mon, 18 Aug to 94104
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eBay item number:203174299987
Item specifics
- Condition
- Brand New: A new, unread, unused book in perfect condition with no missing or damaged pages. See all condition definitionsopens in a new window or tab
- ISBN
- 9781576878613
About this product
Product Identifiers
Publisher
powerHouse Books
ISBN-10
1576878619
ISBN-13
9781576878613
eBay Product ID (ePID)
237642247
Product Key Features
Book Title
Ordinary Day : Kids with Rare Genetic Conditions
Number of Pages
176 Pages
Language
English
Topic
Children with Special Needs, General, Genetics, Photoessays & Documentaries, Diseases / Genetic
Publication Year
2017
Illustrator
Yes
Genre
Family & Relationships, Health & Fitness, Photography, Medical
Format
Hardcover
Dimensions
Item Height
0.9 in
Item Weight
48.7 Oz
Item Length
9 in
Item Width
12 in
Additional Product Features
Intended Audience
Trade
LCCN
2017-946119
TitleLeading
An
Reviews
In her new book, An Ordinary Day , acclaimed NYC photographer Karen Haberberg is spotlighting the little-seen world of families raising medically complex children. Though by definition a rare genetic disease is uncommon, these photos show just how ordinary life can still be in the midst of one., "A touching series of photos show what it's like to raise children with rare genetic conditions, and how some of them have grown into talented swimmers and cheerleaders despite their symptoms. Photographer Karen Haberberg has captured the lives of 27 children who have rare genetic diseases. Those conditions affect one out of 10 Americans, but 95 percent of them do not currently have an FDA-approved drug treatment." -Daily Mail "In her new book, An Ordinary Day, acclaimed NYC photographer Karen Haberberg is spotlighting the little-seen world of families raising medically complex children. Though by definition a rare genetic disease is uncommon, these photos show just how ordinary life can still be in the midst of one." -Refinery29 "This volume sheds light on the extraordinary and unique experiences that often get overlooked. It does so in the simplest way: by shining a light on the ordinary, everyday moments of those who seem, on the surface, to be unlike ourselves." -Books For Better Living AS SEEN IN: ABC News, Cosmopolitian, Daily Mail, New York Family, PDN, and Popsugar., A touching series of photos show what it's like to raise children with rare genetic conditions, and how some of them have grown into talented swimmers and cheerleaders despite their symptoms. Photographer Karen Haberberg has captured the lives of 27 children who have rare genetic diseases. Those conditions affect one out of 10 Americans, but 95 percent of them do not currently have an FDA-approved drug treatment., These photos provide an honest portrayal of what it means to be a family living with these challenges every day. Life, for all of us, is not only made up from the most inspirational and tragic points. It's also of all the small moments in between: riding a swing set, facing off your dad for the last cookie., This volume sheds light on the extraordinary and unique experiences that often get overlooked. It does so in the simplest way: by shining a light on the ordinary, everyday moments of those who seem, on the surface, to be unlike ourselves.
Dewey Edition
23
Dewey Decimal
779/.2092
Synopsis
An Ordinary Day displays photographs set against intimate conversations, presenting the stories of 27 families living with children with rare genetic conditions. Readers will fall in love with each child, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The intimate portraits in An Ordinary Day will inspire hope, empathy, and gratitude in all of us. Piercing and unforgettable, An Ordinary Day illuminates what it means to be a family., Poignant, powerful, life affirming - An Ordinary Day will connect families with children who have rare genetic disorders to one another and to the world., An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences. Life often presents challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and will we can find inspiration and hope. An Ordinary Day displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions. Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs, 5-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a 9-year-old boy who finally learns to eat with a spoon after many failed trials. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions. The every day moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all. Poignant and revelatory, An Ordinary Day illuminates what it means to be a family.
LC Classification Number
TR681.C5
Item description from the seller
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